February Cloud of The Month!!March 3, 2011 4:39 pm 1 Comment
My name is Kathy Baker. I am blessed with two children, Aidan who is 3 and Jacob who is almost 9 months old. Jacob was born on March 23rd, 2010 with a condition called Hypoplastic Left Heart Syndrome and an Intact Atrial Septum. He basically has only half of a heart. I learned of Jacob’s diagnosis at my 20 week ultrasound and it came as a complete shock. We were told we could terminate the pregnancy, have the baby and let him go or choose to do a series of 3 open heart surgeries. His heart would never be “Fixed” but he could have a chance at a normal life.
After weeks of feeling lost in devastation we knew that we had to fight for our little boy. A short time later I heard your song “He’s my son”. I broke into tears because it was if you were speaking from my heart. I listened to that song every night before I fell asleep and anytime I was feeling afraid for Jacob. When I listened to your song I felt as if God was wrapping his arms around me and telling me to HOPE. I felt so empowered and comforted that no matter what happened my son would be ok and God would help me get through it.
Jake was very sick at birth but I never lost faith. He has endured 2 open heart surgeries and 3 heart caths. He will need one more open heart surgery when he is 3 years old and may need a heart transplant when he is older. There is not a day that goes by that I don’t fear losing him but I know that each day I get is a blessing from God. Jacob is developing like any other child and the life that shines through his eyes is like no other. He is such a blessing.
I feel that God blessed me with Jacob so I could help spread awareness and share hope with other mom’s who are just embarking on this journey. I have met so many other amazing heart children and their parents. A group of mom’s and I are starting to create care packages to send to these mom’s before they go to deliver the babies.
I just feel like this was God’s plan all along. Jacob has touched so many lives and I am so proud that I was chosen to be his mother. It has not been an easy road but it has been so worth it and I will always tell Jacob how special and loved he is. His big brother Aidan had also learned so much about love and compassion through this journey. What was once the biggest devastation of my life has turned out to be the biggest blessing. I know how precious life is and every moment is spent cherishing life and my children.
I still listen to “He’s my son” all of the time. Thank you so much for speaking what my heart was feeling and helping me hold onto my faith and help others.
If you ever would like to see pictures of Jacob or follow his story. You can at jacobsspecialheart.blogspot.com
Mom to Jacob (HLHS)
Categorised in: News
This post was written by Mark